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Saturday, January 29, 2011

sicky sick

Well - Charlotte's nick name took on new meaning last night - as she showed off her Superior upChucking skills.

The tummy bug hit her at 6 - and there was upchucking every half hour till about 12:30am.  After some slow hydrating - she finally managed to get some sleep around 2:30.  Team lageston pulled through, with me on sick kid duty, and Stefan washing her blankets all night.  We tag teamed again today with catching up on sleep. 

We're now taking it easy - and hoping it won't hit us.  At least we know what to expect - and hopefully we'll continue the teamwork and take it in turns.  Charlotte is feeling much better!

Friday, January 28, 2011

TGIF - ?

So - Stefan had his MRI yesterday - no update for you though since we haven't talked to a doctor.  I imagine there will be a doctor's appointment next week - I'll start calling Monday for that.

Charlotte's pediatrician appointment went well.  Hip x-ray was good - no problems there.  All the things she was looking for with the blood work were good.  There are a couple genetic tests still pending.

So - that was all good news.  She's going to put a referral in for neurology - but that will probably take a couple months.  If Charlotte is walking by then (which we are hopeful she will be) - then that appointment would just get cancelled.  We'll have a follow up with the pediatrician in a couple months.

The infant development consultant came this afternoon too.  I know I hadn't written about her before.  Our public health nurse had put the referral for the infant development center ages ago (when she had put the referral in for physio).  We are now working with someone from the aboriginal infant development center.  So far - I haven't seen any difference between the infant development consultant and the public health nurse - but oh well - the more the merrier on our team.  They do these ages and stages questionnaire which sees where Charlotte is with communication, gross motor, fine motor, problem solving and social skills.  We had been doing these questionnaires every 3 months since Charlotte was born.  I thought this was the norm, but many other parents I talk with don't do this kind of thing.  This was what got the push for physio.  I find them a good resource - not only for these questionnaires - but they provide other info too!
So - no updates there - she said we are doing everything right (good to hear)!

To end this exciting day off - Charlotte seems to have a tummy bug - and started vomiting an hour ago - fun!  Oh - my poor little girl.  Good thing we had planned a low key weekend at home!

Wednesday, January 26, 2011

busy week

It's been a busy week (at work and with appointments!).
  • Opthamologist
    A week before we discovered the brain tumour - Stefan had been to see the optometrist.  It was pretty routine - and Stefan's vision is great - but there was one test that set off red flags.  A beam was sent into each eye, and Stefan was supposed to push a button for each beam.  On his left eye - he got most of the beams, when they did his right eye - he asked "when are we starting" but the test was done - ie. he didn't pick up any.  The optometrist had also said there was some swelling behind the eye.  He referred him to a specialist.  The appointment was the first week of January at St. Pauls - we ended up cancelling it - as we had discovered the reason for the swelling

    This Monday - Stefan got a call reminding him of an appointment Tuesday - this was news to us!  An Opthamologist near metrotown.  I guess the optometrist put in the referral to two different spots to see who could see him sooner (kudos to him!).  Well this time, instead of cancelling - Stefan told them his situation - and they said they would still like to see him

    Long story short - if the MRI hadn't happened December 17th - the first Opthamologist appointment would have sent him to ER due to the swelling behind his eyes (my lecture of this blog: Go see an optometrist!).  Stefan has a couple follow up appointments with the Opthamologist (I guess they will just monitor his eyes to make sure there is no damage - but I'm guessing!)
  • MRI
    We finally got an MRI appointment.  We had originally been told they wanted to get Stefan in by the 27th - and we were losing hope of that - but we got the call today - Stefan goes for his MRI tomorrow at 5pm!
  • Charlotte
    We have Charlotte's follow up appointment with the pediatrician Friday morning, and then her follow up with the infant development consultant Friday afternoon.
Whew!  I'm tired just writing this.  It's also been a busy week at work - looking forward to it calming down next week!