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Saturday, February 19, 2011

Decision Time

We had two meetings this week with two different surgeons.  The appointments were like night and day, very different - in approach and opinion.  That makes it very difficult for Stefan to make a decision on surgery - so we are going to enlist a third opinion. 

surgeon #1 (Dr. C)surgeon #2 (Dr. L)
length of meeting15 minutes1 hour
propsnonemodel of brain, both MRIs
opinionno more surgery, just do radiation70-80% of tumour can be removed with minimal risk
risks of surgery- Stefan would be a vegetable who wouldn't know who I was (he used the word vegetable a lot)- minimal
- 1-2% chance infection (typical for any surgery)
- minimal bleeding risk
- 5-10% chance of some speech impairment (not so severe he couldn't communicate)
- 25-30% chance of loss of vision in top right line of sight (already experience some loss here)
Rest of conversationnone- explanation of both MRI's
- explanation of the risk of having so much pressure on the brain
- explanation of surgery (using MRI to map where they are cutting)
- not doing surgery now would not close the door to surgery, could do radiation and surgery at a later date (but recommendation is for surgery now by both Dr. L and Dr. M)


Stefan is understandably worried about the risks.  But - we are also thinking long term.  We want Stefan around - and want to take the steps to keep him around as long as possible.

Right now we are most likely going to go with surgery as the next step.  But - we will enlist a third opinion - and hope that the third surgeon's opinion is in line with Dr. L.  Once we decide on surgery - it would take place probably within the month.

6 comments:

Brown Sugar said...

Good grief! "Night and day" is right. I sure hope the docs can help you guys come to a decision soon. Thinking of you three always! xo

Anonymous said...

Wow guys! You have been busy and rightly so! Charlotte is so blessed to have the smart parents that she does! I am positive the effort you guys are putting in now in terms of knowing what is available for treatment, is definitely going to make a huge difference on Stefan's recovery! Keep fighting guys!!!!! We are all rooting for you and sending good thoughts from Ontario!!!!
Sarah Tarbuck and family

Anonymous said...

Yikes. It is so scary when you get 2 conflicting sets of advice. I like the sound of Dr. #2 Any doc that takes the time to go over things like that giving you answers and educating you always ranks highly in my books :) Good luck! Kat

Amanda said...

That's confusing, to say the least. I can see how you'd be leaning toward the doc who took the time to go over all the results with you. I'll be thinking about you all and sending my best decision-making vibes.

Bluebear Jeff said...

Best wishes for whichever path you end up choosing.


-- Jeff

Anonymous said...

Just keep hoping and praying!