no rest for the weary....yet

We are home!  Charlotte finally hit her magic number with her 2pm blood test and we left the hospital around 4:30.

I'm always happy to be home.  Especially when Charlotte eats more her first meal at home then she has the past week!  Charlotte's mouth has not gotten worse - which is great.  She was very co-operative with her baking soda rinse before bed and has been good about drinking fluids.

We came home with quite the arsenal of drugs:

• 6MP - her chemo drug, she takes this Friday, Saturday, Sunday and Monday.  It needs to be taken on an empty stomach, so I usually just wake her up before I head to bed to give it to her, usually around 10pm.
• Leucovorin - this is the 'antidote' to the methotrexate, and helps Charlotte to clear it.  This is the first time we have taken it home though.  She will just be on this for 24 hours, she had a dose at 6pm, will get it again at midnight, 6am and noon tomorrow, hence the no rest for the weary.  
• Morphine - for pain.  Might seem a bit overkill but since we can't use tylenol, since it masks fevers, morphine is the go to pain reliever.  Hopefully we won't need to use it.
• Ondansetron - this is for nausea.  Based on the past two rounds, she will probably get it tomorrow and Saturday and then we should be okay.
• Septra - Charlotte has been on this since the beginning and will be on it I believe for a few months past maintenance (so basically the next 2.5 years).  It's an antibiotic which is used to prevent this one type of pneumonia which cancer patients are susceptible to.  She gets this twice a day on Saturday/Sunday/Monday.
• Triple cream - this is for her bum.  It's a concoction made up by one of the oncologists at childrens, and is just a mix of desitin (the strong diaper cream you have seen on the shelves), polysporin and nystatin (I'm not sure what that is!).
• Glutamine - which she gets twice a day to also help with the mouth sores, you can find it at a health food store
• PEG 3350 - which is to help her do her # 2's and is not new to us as she was using it before she was diagnosed.

Tomorrow my Mom will be by to help and we'll all be cooking a turkey.  We will spend the day catching up on the stuff that was ignored the past week like a grocery shop and watering the plants! The leucovorin will be finished up, and with turkey in our belly, we should sleep pretty good tomorrow night - it can't come fast enough!

Big thanks for all the prayers, positive thoughts and nice messages - I believe they helped get us home!