superhero

superhero

Tuesday, June 5, 2012

back to the bubble

We finally hit the magic number, Charlotte's ANC was 1.4 today - which is good news as we can resume treatment. 

We had a great break out of the bubble.  We all had a fantastic time at the Child Run - and an excellent $4,721 was raised by our small but powerful army!  Thank you to everyone who came out or donated!  Stefan and I really enjoyed seeing all the familiar names on the donor list.  If anyone tuned into the Miracle Weekend telethon on Global, I'm sure you were watching with a different perspective this year.  I teared up a number of times watching it.

It will be hard to go back into the bubble and back to chemo.  The past few days of freedom and a (relatively) healthy little girl were a nice tease.  Each day Charlotte gets better and better - more energy, more smiles, more chattering.  I'm hoping the chemo doesn't bring her down to much during the remainder of this phase.  The second half of this phase, the next 28 days, will be identical to the first half minus the lumbar punctures.  Which is good - no fasting required or general anesthetics.

This weeks schedule:
- full day tomorrow at Children's Hospital
- quick trips into Children's Hospital Thursday, Friday and Saturday
- chemo given at home every night this week
- I'm guessing there may be a visit to Children's Hospital early next week for a possible blood transfusion


Charlotte's Army team members
family shot

just because Mr. Super Smiley Pants doesn't get enough face time...

No comments: